"We'll get back to normal," I tell myself.
"Our life won't be like this forever, we will have our normal life again," I reassure myself as we have gone through treatment for Lyme Disease.
I am two years and two months into my treatment. My husband is one year and eight months into his treatment.
We weren't well before our diagnoses and were gradually getting worse, so a diagnosis was a relief.
But treatment also made our symptoms, and therefore our functioning, worse.
The process of killing off the bacteria that causes Lyme Disease really wreaks havoc on the body. In the short term this made everything worse.
So, I kept telling myself we would be back to normal when we were done with treatment.
However, as I am feeling better and approaching the end of my treatment, I realize that we won't be getting back to normal.
The life we had before Lyme has been erased. The passage of time alone is enough to make our lives different.
However, the consequences of treatment, both good and bad ensure that the old normal will never be had again.
Instead we will be developing a new normal.
And so it is for all of life's changes.
The new normal could be an improvement or not, depending on how we navigate the events leading to the new normal.
In our case, we have developed a life that includes only the essentials. Energy is a precious resource and we learned to use it on the important things. Non-essential activities fell by the wayside.
If it was something we loved, we hung on to it as much as possible. If it wasn't necessary or wanted, it was tossed.
Clothing that required special handling? Gone.
Folding underwear? Not any more.
Obsessing about the house and scrubbing the tile with a toothbrush? To the curb.
Unnecessary social activities? 100% out.
Also, other people's poor planning or lousy choices are no longer our emergency.
I used to have a huge problem bailing family members out of various crises. Not so much anymore. I'm still tempted but if no one is dying and they are experiencing the consequences of their actions, I'm out.
I've had the opportunity to become more balanced in my approach to life. I have more reasonable expectations and I am less of a perfectionist. I've also learned to rest. Being idle was nearly impossible for me at the start of this process. I am so much better at just enjoying life.
My husband has the opportunity to discover interests and parts of himself he wasn't able to explore in his younger years. He has realized that he enjoys photography and being outdoors. He has also realized that he has a tendency to run himself into the ground. Being sick has created an opportunity for him to learn to take care of himself, to say no and respect his limitations.
And, that is the thing. Every event in our lives is an opportunity. We can use it to grow or we can simply suffer.
It is all in how we look at it.
My initial mindset was "Why me?" It quickly became evident that the "why me?" mindset wasn't helpful.
What was helpful was asking "What is essential? What can go? What opportunities are here for me to be a better person? What can I learn? What strategy can I try? Do I have reasonable expectations? Do I need to ask for help? Do I need to rest?"
That approach got me through the worst of the symptoms and will help me develop a new normal.
I'm excited to learn more about our new normal as we complete our treatment.